Mollaret's Meningitis Support Group

Daily Support Designed to HELP Mollaret's Meningitis Sufferers'

This syndrome is very RARE. WE are OUR best SOURCE of information. Chronic Headaches, photo & phonophobia, fibromyalgia, PAIN etc.

Latest Activity

Elizabeth Alpert replied to Michelle Ferguson's discussion Finding the fire
"Does it ever go away is the question???  I have had this disease since I have been a teenager.  I  am 45 years old and now i am dealing with a lot of stomach issues>  Not just IBS.... does anyone else have these problems?? I…"
6 hours ago
Annie replied to Juliana Carson's discussion Dizziness ????
"I'm confused about why your doctors are confused. It makes sense that meningitis could cause residual dizziness. Also, it's well-established that herpes simplex (the infection responsible for most recurrent meningitis) can infect the…"
Wednesday
Annie commented on Michelle Ferguson's status
"Yes, and it's herpes (the infection responsible for the vast majority of recurrent meningitis) reactivating in the lumbosacral nerves. Have you considered suppressive antiviral therapy?"
Wednesday
Michelle Ferguson posted a photo
Tuesday
Juliana Carson replied to Michelle Ferguson's discussion Finding the fire
"Hi there Michelle Gosh - i can hear your anguish ! Yea - i get that fire - but not on day 5 - mine arrives the second the MM arrives. I can go to sleep one night - feeling fine and wake up the following morning- and it has arrived. The pain then…"
Monday
Michelle Ferguson posted a discussion

Finding the fire

I am wondering if any fellow mm SURVIVORS experience the fire that comes out of nowhere about the 5th day of each (I'm on #9) episode. It's like my whole being says "NO #%##% WAY" and the determination to persevere over pain ignites. Any feedback would be so helpful, yesterday was the first time I ever posted a comment. I have been a silent sufferer for so long, due to many factors. I see the fear in my children's eyes each time I'm admitted, I've begun to feel resented and a liability by my…See More
Monday
Rich Diehl commented on Rich Diehl's blog post Intermittent Fasting
"Interesting observation. If MM flares up when you are hungry, it has been gradually 'training' me to overeat over the years. I'm going to continue on, because I need to lose the weight, and the symptoms appear to be reduced each…"
Monday
Tracey Martel commented on Rich Diehl's blog post Intermittent Fasting
"Hi Rich, the only thing I can say is every time I try to loose some weight MM flares up. If I cut my calories to fast MM doesn't seem to like that. Tracey "
Monday
Tracey Martel left a comment for Michelle Ferguson
"Hi Michelle, I hope you feel better soon. Do you lay on our left side? I find when I have to stay in bed with an episode ,I do get pains down my legs. I thought is was from staying in bed to long. Also when I lay on my back I put a pillow under my…"
Monday
Michelle Ferguson posted a status
"Day 4 my 9th episode in 2 years. I am having lower back pain, left side radiating down my leg that started last night. Anyone else had this?"
Sunday
Rich Diehl posted a blog post

Intermittent Fasting

     Has anyone every tried intermittent fasting. I just started on the 5:2 diet, where you take two days of the week and eat less than 500 calories (modified fasting). For the first few weeks, it gave me a mollarets flare up for a few days each time I fasted. However, each week that passes I seem to get fewer flare up. Anyone else have experience with this?RichSee More
Sunday
Michelle Light Whittemore-Whitt commented on Michelle Light Whittemore-Whitt's blog post Annual Payment for This Site is DUE in 6 weeks. Please donate via PayPal today if your able to!
"I believe its $250 annually.  I am not sure if its gone up this year though.  Let me check."
Sunday
Rebecca is now a member of Mollaret's Meningitis Support Group
Saturday
Rich Diehl commented on Michelle Light Whittemore-Whitt's blog post Annual Payment for This Site is DUE in 6 weeks. Please donate via PayPal today if your able to!
"Hi James,      How much do you need to raise? Rich"
May 15
Michelle Light Whittemore-Whitt's blog post was featured

Annual Payment for This Site is DUE in 6 weeks. Please donate via PayPal today if your able to!

Hello everyone!  The annual payment for this site is due in about 6 weeks.  I cannot afford to pay for this alone due to illness and I'm currently not working right now.  With that said, if you are able to help with a donation (any amount is much appreciated), please consider doing so through PayPal.  It is a secure way to donate…See More
May 15
Michelle Light Whittemore-Whitt posted a blog post

Annual Payment for This Site is DUE in 6 weeks. Please donate via PayPal today if your able to!

Hello everyone!  The annual payment for this site is due in about 6 weeks.  I cannot afford to pay for this alone due to illness and I'm currently not working right now.  With that said, if you are able to help with a donation (any amount is much appreciated), please consider doing so through PayPal.  It is a secure way to donate…See More
May 15

Forum

Finding the fire

Started by Michelle Ferguson in Sample Title. Last reply by Elizabeth Alpert 6 hours ago. 2 Replies

I am wondering if any fellow mm SURVIVORS experience the fire that comes out of nowhere about the 5th day of each (I'm on #9) episode. It's like my whole being says "NO #%##% WAY" and the…Continue

Dizziness ????

Started by Juliana Carson in Sample Title. Last reply by Annie on Wednesday. 1 Reply

I am still dizzy !! Usually during an episode i am dizzy - but this time it has lingered - and now four months after the last episode - i am still ridiculously dizzy !! Is this something that anyone…Continue

Just been diagnosed !

Started by Juliana Carson in Sample Title. Last reply by M from Finland May 14. 8 Replies

Hi there all of you ...Thanks for accepting me into this group !! I obviously found you the same way you all found each other  - and it was quite a relieve knowing that there are others like me once…Continue

White blood cell count

Started by April in Sample Title. Last reply by April Apr 12. 3 Replies

Hello, my name is April. My husband is now recovering from his sixth episode of aseptic meningitis. Each time, it seems the recovery process is longer and harder. He was discharged from a week…Continue

 

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Blog Posts

Intermittent Fasting

Posted by Rich Diehl on May 17, 2015 at 10:31am 2 Comments

     Has anyone every tried intermittent fasting. I just started on the 5:2 diet, where you take two days of the week and eat less than 500 calories (modified fasting). For the first few weeks, it gave me a mollarets flare up for a few days each time I fasted. However, each week that passes I seem to get fewer flare up. Anyone else have experience with this?

Rich

Annual Payment for This Site is DUE in 6 weeks. Please donate via PayPal today if your able to!

Posted by Michelle Light Whittemore-Whitt on May 15, 2015 at 11:07am 2 Comments

Hello everyone!  The annual payment for this site is due in about 6 weeks.  I cannot afford to pay for this alone due to illness and I'm currently not working right now.  With that said, if you are able to help with a donation (any amount is much appreciated), please consider doing so through PayPal.  It is a secure…

Continue

IM BACK! How is Everyone?

Posted by Michelle Light Whittemore-Whitt on March 29, 2015 at 5:44am 3 Comments

Welcome to all the newcomers.  I missed you all, bring me up to speed on what is happening.

Michelle W.

I just wanted to share something that I tried with everyone.  I do not believe that my side effects are as bad as some peoples, but I do have alot of the same symptoms.  About 6 months I went to the …

Posted by Brenda Mayer on January 7, 2015 at 10:20am 3 Comments

I just wanted to share something that I tried with everyone.  I do not believe that my side effects are as bad as some peoples, but I do have alot of the same symptoms.  About 6 months I went to the health store, I spoke with a doctor and they tried me on some vitamins.  I took olive leaf for the viral infection, I have not had symtpoms for the last 5 months.  I struggle with major headaches that last for months during an onset.  I have been headache free for 5 months.  Nothing the doctors…

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