Daily Support Designed to HELP Mollaret's Meningitis Sufferers'
This syndrome is very RARE. WE are OUR best SOURCE of information. Chronic Headaches, photo & phonophobia, fibromyalgia, PAIN etc.
Hello all, nice to meet others with the same problems. I have been diagnosed with molllarets by my doctor after my 5th hoapitalization. Every time i get a lumbar puncture, every time i get better in…Continue
WOW! haven't been on here for quite a while (having so many other medical issues) when I joined this site I think there were 6 members! Anyway, I have a question for all my fellow Mollaret members:…Continue
I jut had a thought the other day. Has anyone gone to the hospital, had a spinal tap done, and it DID NOT show meningitis? I just asked this because I wondered if it is always there in our spinal fluid because of mild to moderate day to day symptoms. Every time I have went, they found it, but I'm having so many moderate bouts, I am on my last string in going to the hospital. Every time I go, it's the same thing a spinal tap, and I really get scared now because I had a very bad experience…Continue
Hello everyone! I hope this message finds you well today. I wanted to thank everyone who has donated to the site. In fact, we received two full payments from (2) members Tommy G and Jeremy D. A couple of others donated $20 to the site. Please don't send anymore money until I get a paypal acct set up and then for those who wish to donate towards the book they can do so. I have much information to update you on regarding the book. Its amazing technology we have at our finger tips…Continue
I hate to be the bearer of bad news, but we may have to cancel the support site. I didn't get any responses from any members on helping this year with the payment of the site. I have had great help the past two years and I really appreciate every one of you who helps with this site, not just for money but for responding to new members needs and getting the support out there. I thank each and every one of you. I am trying to get Ning to stop any deductions from my debit card as I have…Continue