Daily Support Designed to HELP Mollaret's Meningitis Sufferers'
This syndrome is very RARE. WE are OUR best SOURCE of information. Chronic Headaches, photo & phonophobia, fibromyalgia, PAIN etc.
WOW! haven't been on here for quite a while (having so many other medical issues) when I joined this site I think there were 6 members! Anyway, I have a question for all my fellow Mollaret members:…Continue
Hi all!! I just wanted to offer my phone number to anyone who would like to chat on the phone about their experiences with MM episodes. I am looking to swap stories and in doing so, be able to bring…Continue
Its been almost 6 weeks since I got to go to hospital. I was there for 2 weeks, and got drug medicine for pain and asiklovir iv for 2 weeks. And still I got headache every day (of course not so bad…Continue
U would think I might be used to this by now. I have been struggling with mm for 20 years now. I get really bad bouts every few years. But this is by far the worst. I have been sick for 2 months now,…Continue
While doing research on my own I discovered a condition called Giant Cell Arteritis. Symptoms include persisting headaches, flu-like symptoms, unexplained fatigue, loss of vision. Sound familiar?. A test can be done, on an outpatient basis, by a Rheumatologist to confirm if this is the cause of your symptoms. I am going to follow through with this and have it done. Pleae google this condition "Giant Cell Arteritis" and read about it. Treament involves the use of high doses of…Continue
I had an appt. at Mass General in Boston. I wasn't sure if I should tell the neurologist what I think and ask questions, or if I should just let him guide the interview. I went with the latter. In the end he said he was 95% sure that I have migranes, (my mom has a history of migranes) but he would put in my chart that if I present in a meningitis like state, that they do an LP. I am happy about this, but his impression of someone with meningitis does not really fit my description because…Continue
Hey there MM people,
I haven't been on the site for a long time. Why? I'm not sure. But I feel its important to tell you I've heard of a doctor in Reno who Knows a lot about MM. He is a pediatrics. So My Daughter in law took my grandson to this guy because he complaints about a headaches frequently so while talking with this neurologist she mentioned my MM and to her surprise he was aware and knows a lot about it. In his conversation he asked if I have Arthritis(3 surgery's for it).…Continue