Daily Support Designed to HELP Mollaret's Meningitis Sufferers'
This syndrome is very RARE. WE are OUR best SOURCE of information. Chronic Headaches, photo & phonophobia, fibromyalgia, PAIN etc.
My daughter, Isabella, has had recurring meningitis every time she gets a middling sickness of any sort. She had once gotten a full blown version of meningitis. There is a history of herpes simplex…Continue
Hi....just got diagnosed after a few weeks in the hospital. My first bout of meningitis was when I was 17. Over the last 30 years, I would have recurring outbreaks every couple of years, although…Continue
WOW! haven't been on here for quite a while (having so many other medical issues) when I joined this site I think there were 6 members! Anyway, I have a question for all my fellow Mollaret members:…Continue
Hi all!! I just wanted to offer my phone number to anyone who would like to chat on the phone about their experiences with MM episodes. I am looking to swap stories and in doing so, be able to bring…Continue
My daughter is 12 years old. She has recurrent aseptic meningitis Mollaret, 9 attacks for 3 years . The first attacks were with 1-2 times per year, and for the last 2 months of her fifth bout of meningitis , ie every 5-15 days, she has a new attack.
The first attacks always gave her antibiotics . Last 3 attack her treat only dexamethasone. My doctor recommended it dexamethasone administered immediately after the attack. And last 3 attack my daughter did dexamethasone therapy in the first…
I have acquired a med mj card, and found this the best way to get though my tough days. I hope this helps someone.
I’d like to show you how to make this amazing cannabis preparation. It’s a vegetable-glycerin-based tincture that you can make with just a few inexpensive kitchen items. I’m specifying vegetable glycerin so that you don’t confuse it with the product used to make soap, which comes from animal fats and is definitely not the same thing. Vegetable glycerin…Continue
I joined this page in June 2013 after a diagnosis and an 8 day hospital stay. Thank God I found this site because the doctors sure don't know very much about this. I just came home from the hospital again 2/10/2014 after another episode. I had been telling my doctors, infectious disease doctor & neurologist that I don't think it ever totally went away and they looked @ me like I had three heads. I'm pretty sure all of you on this site are aware that the headaches associated with this…Continue