Daily Support Designed to HELP Mollaret's Meningitis Sufferers'
This syndrome is very RARE. WE are OUR best SOURCE of information. Chronic Headaches, photo & phonophobia, fibromyalgia, PAIN etc.
I'm a patient at the hospital I work at, so of course coworkers who treat me know what's up; I hope they practice confidentiality. What I'm wondering is what you tell people who ask why you keep…Continue
WOW! haven't been on here for quite a while (having so many other medical issues) when I joined this site I think there were 6 members! Anyway, I have a question for all my fellow Mollaret members:…Continue
Hello all, nice to meet others with the same problems. I have been diagnosed with molllarets by my doctor after my 5th hoapitalization. Every time i get a lumbar puncture, every time i get better in…Continue
I have blood tests monthly for kidney damage, and no damage despite high doses for months on end. I want to share the data so people have it. In medical papers, they talk about kidney failure, but it seems to be only people who are on IV's, not pills. I have never been on an IV, only pills.
I'm not saying the dose I'm on would be ok for everybody, but here's the data:
DOSES (per day)
Prior to July 2013 Acyclovir or Valtrex at "normal" doses. Sometimes I was…Continue
I jut had a thought the other day. Has anyone gone to the hospital, had a spinal tap done, and it DID NOT show meningitis? I just asked this because I wondered if it is always there in our spinal fluid because of mild to moderate day to day symptoms. Every time I have went, they found it, but I'm having so many moderate bouts, I am on my last string in going to the hospital. Every time I go, it's the same thing a spinal tap, and I really get scared now because I had a very bad experience…Continue