Mollaret's Meningitis Support Group

Daily Support Designed to HELP Mollaret's Meningitis Sufferers'

This syndrome is very RARE. WE are OUR best SOURCE of information. Chronic Headaches, photo & phonophobia, fibromyalgia, PAIN etc.

Latest Activity

Melissa is now a member of Mollaret's Meningitis Support Group
yesterday
Gwen O'Leary replied to Gwen O'Leary's discussion Drugs
"Rebound effect.  Didn't think of that...... :("
Thursday
Tracey Martel left a comment for Pricilla Mbangiwa
"Good luck today on your appointment. Keep me posted. Anything I can do let me know...Tracey"
Monday
Tracey Martel left a comment for Pricilla Mbangiwa
"Good luck today on your appointment. Keep me posted. Anything I can do let me know...Tracey"
Monday
Joyce replied to Gwen O'Leary's discussion Drugs
"I went from 1 gram to 2 grams a day a month ago. Headaches and dizziness final stopped.  Talk to your doctor before you go off them if you do. I read a study that when you go off the anti virals, many people have a episode of…"
Monday
Natalie Friedman replied to Gwen O'Leary's discussion Drugs
"I am going to continue taking them. Good luck!"
Monday
Gwen O'Leary replied to daniel's discussion memory is gone and going quickly
"My memory has never been stellar, but boy it has sure deteriorated over the last couple years.  I wonder too, how much damage has been done.  I'm fortunate and live in Canada - no medical bills.  But it's very scary...."
Monday
Gwen O'Leary replied to Gwen O'Leary's discussion Drugs
"Thank you.  I have an important event in September that I need to be healthy for, but I'm still toying with stopping them and seeing what happens after that.  I've never felt "right" since I started taking them you…"
Monday
Beatrice Klingman left a comment for Beatrice Klingman
"Yes I have had 3 episodes of MM in the last 3 years. All episodes took place in Alaska, and the ignorance caused me to be left alone in great pain. I suffered Kidney failure and was overdosed and died. I have Recently I moved home to La to be near…"
Monday
Tracey Martel left a comment for Beatrice Klingman
""Hi Beatrice, welcome to the group. Are you a sufferer of MM? If so look around the web site and if you have any question feel free to ask. Also tell us about you. Tracey""
Monday
Tracey Martel left a comment for None of your business
""Hi , welcome to the group. Are you a sufferer of MM? If so look around the web site and if you have any question feel free to ask. Also tell us about you. Tracey""
Monday
Tracey Martel liked Michelle Light Whittemore-Whitt's blog post THE SITE HAS BEEN PAID IN FULL BY ITS MEMBERS!
Monday
Profile IconNone of your business and Beatrice Klingman joined Mollaret's Meningitis Support Group
Monday
Natalie Friedman replied to Gwen O'Leary's discussion Drugs
"I also take Valtrex, 1 gram daily.  I was very hesitant.  My bouts have been far apart. 1981,1990, 1996, 2001 and 2006.  The last bout settled in my lower back and legs and it was extremely painful and that was the time that I decided…"
Aug 23
tammy j jennings commented on Michelle Light Whittemore-Whitt's blog post THE SITE HAS BEEN PAID IN FULL BY ITS MEMBERS!
"thank you so much to all who have donated, I am very grateful"
Aug 20
Christine commented on Michelle Light Whittemore-Whitt's blog post THE SITE HAS BEEN PAID IN FULL BY ITS MEMBERS!
"So glad to hear that the site will continue! I would love to hear more about this "book"?"
Aug 19

Forum

Drugs

Started by Gwen O'Leary in Sample Title. Last reply by Gwen O'Leary on Thursday. 6 Replies

I've talked about this before.  I take 1000 mg of valocyclovir (valtrex) every single day of my life.  It has been one year since my last hospitalization, and I've had one mild episode inbetween.  I…Continue

memory is gone and going quickly

Started by daniel in Sample Title. Last reply by Gwen O'Leary on Monday. 5 Replies

Hello all, nice to meet others with the same problems. I have been diagnosed with molllarets by my doctor after my 5th hoapitalization. Every time i get a lumbar puncture, every time i get better in…Continue

MRI

Started by Joyce in Uncategorized Aug 14. 0 Replies

""MRI shows a oblong, flare bright focus in the frontal deep white matter of my brain. Basically it means a lesion. Any one else have this?""Continue

Doctor who specializes in MM?

Started by Christine in Sample Title Aug 1. 0 Replies

Has anyone found or are being treated by a doctor, maybe a neuro-infection disease doctor, who specializes in this or even heard of it??!! Getting the proper treatment is frustrating and I am willing…Continue

 

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MRI

Posted by Joyce on August 15, 2014 at 10:42pm 0 Comments

“MRI shows a oblong, flare bright focus in the frontal deep white matter of my brain. Basically it means a lesion. Any one else have this show up on a MRI. Now they think I have MS but I think its just from the Mollaret's.

THE SITE HAS BEEN PAID IN FULL BY ITS MEMBERS!

Posted by Michelle Light Whittemore-Whitt on August 15, 2014 at 5:37pm 2 Comments

Hello everyone!  I hope this message finds you well today.  I wanted to thank everyone who has donated to the site.  In fact, we received two full payments from (2) members Tommy G and Jeremy D.  A couple of others donated $20 to the site.  Please don't send anymore money until I get a paypal acct set up and then for those who wish to donate towards the book they can do so.  I have much information to update you on regarding the book.  Its amazing technology we have at our finger tips…

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Hello

Posted by katie on August 14, 2014 at 12:08am 0 Comments

I had no idea so many others had this problem! I think people think I'm exaggerating about the headaches or just using headaches as an excuse not to do stuff.  I had my first meningitis in 1986 at 17 and almost died and then in 1992 and 2011 and again last September.  Since this last time I've never been quite right.  I have chronic headaches and tiredness and just lots of small...not quite rights.  Just today I went to a new doc (because I moved and was out of pain meds) and she'd never…

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PLEASE NOTE WE MAY LOSE THE SUPPORT SITE.

Posted by Michelle Light Whittemore-Whitt on July 3, 2014 at 9:59pm 6 Comments

I hate to be the bearer of bad news, but we may have to cancel the support site.  I didn't get any responses from any members on helping this year with the payment of the site.  I have had great help the past two years and I really appreciate every one of you who helps with this site, not just for money but for responding to new members needs and getting the support out there.  I thank each and every one of you.  I am trying to get Ning to stop any deductions from my debit card as I have…

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