Daily Support Designed to HELP Mollaret's Meningitis Sufferers'
This syndrome is very RARE. WE are OUR best SOURCE of information. Chronic Headaches, photo & phonophobia, fibromyalgia, PAIN etc.
I was talking with some folks over on the Meningitis Now forum and there were several people that were hoping for a Facebook group to communicate with each other, so I just went ahead and did it. I…Continue
I finally have an appt. with a pain management doc. My PC is refusing to give prescriptions at this point. I have HSV 2 outbreaks at least once every two weeks on my legs, neuropathy from that,…Continue
I started taking lamotrigine Friday to help as a mood stabalizer, but since then I have been fighting off a flare up and been having trouble sleeping. I have a call into the psychiatrist about it,…Continue
I have Mollaret's and have tried yoga before to help with my brain injury, but I flared really bad afterwards. Has anyone else experienced anything good or bad related to MM. For me it seems like…Continue
Since a lot of people here suffer from photophobia or dizzy spells after bouts i`ll try and keep this as short as possible, the following protocol is something i have put together from my own exhuastive research , personal experience and from top neurologists here in Shanghai who actually understand a good bit about our condition.
The following protocol has reduced my HSV 2 induced MM bouts to roughly 1 per year, previously i was getting around 5 per…Continue
While I've told this story many times, only we can appreciate the impact MM has on our lives. I tell it to help others.
I am a 47 year old male and have suffered the symptoms of MM for 40 years. It is suggested I contracted it when I had the chicken pox, a form of herpes, as a child about 6-8 years of age.
As a kid I had intermittent headaches, some were severe and caused vomiting, usually after some kind of party or bbq. My parents would say I got headaches when I got excited…Continue