Daily Support Designed to HELP Mollaret's Meningitis Sufferers'
This syndrome is very RARE. WE are OUR best SOURCE of information. Chronic Headaches, photo & phonophobia, fibromyalgia, PAIN etc.
Hello all, nice to meet others with the same problems. I have been diagnosed with molllarets by my doctor after my 5th hoapitalization. Every time i get a lumbar puncture, every time i get better in…Continue
I was talking with some folks over on the Meningitis Now forum and there were several people that were hoping for a Facebook group to communicate with each other, so I just went ahead and did it. I…Continue
I am curious to know how many of us are out there. I've reesched as much as I can and can only find one website that references a number from 1994. Last reported number was 50 cases in the US. DOES…Continue
Just would like to report the success another sufferer i am friends with here in Shanghai had with using IVIG and daily ayclovir 500mg, Since he started the IVIG last year he has had 0 MM flare ups within almost a year ( he usually got 3-4 before)
The specialist neuro immune physician here at Huan Shan hospital believes that a big part of what causes MM is not the actual HSV 2 virus but an hyper sensitive immune mediated reaction to the presence of HSV 2 in the spinal…Continue