Daily Support Designed to HELP Mollaret's Meningitis Sufferers'
This syndrome is very RARE. WE are OUR best SOURCE of information. Chronic Headaches, photo & phonophobia, fibromyalgia, PAIN etc.
I was diagnosed 25 years ago with this disease, later officially Mollaret's. It makes sense to me that it might be a new strain of HSV2 or drug resistant. In any case, it has been a nightmare and not…Continue
I was diagnosed with hsv2 seven years ago. Five years ago I started getting headaches and back pain that I could only describe as shooting up my spine and out my eyes, my Dr. suggested Mollaret's. I…Continue
Super curious to find out how many of us have had an outbreak of shingles prior to a MM episode. About 2 weeks ago I began to notice that my right upper groin area was numb, in just one spot. The…Continue
My husband recently had meningitis for the third time. Now they have diagnosed it as Mollarets. We are hoping for feedback to find commonalities. We don't know what the trigger is, or if there is a…Continue
We went to the Doctor that has treated Mollarets. He is running a test, similar to spinal tap. It will detect any leakage of fluid in his system. This can cause the asceptic meningitis. Also, Ibuprofen is also a trigger!!
We will be meeting with a doctor in Mass general that has written an article on AM. I asked him if he has heard about the fluid leak and he said he has. So, looks like we are on a good track here. I will update you all when I know something.
I thought it would be awesome to bring awareness to this debilitating disease/syndrome by writing a book. That book came to a halt when my husband got sick and I started getting worse in my own illness. Well, I think its high time to get this book finished. Who's with me? Who wants to help? Outside of the book, we also have an opportunity to get these T-shirts done at a decent price if several order them. Hit the like button if you might purchase a T-shirt and that will give me an idea…Continue