Daily Support Designed to HELP Mollaret's Meningitis Sufferers'
This syndrome is very RARE. WE are OUR best SOURCE of information. Chronic Headaches, photo & phonophobia, fibromyalgia, PAIN etc.
Hi my name is Debbie and I live in Texas. Was diagnosed 2 years ago but had my 3rd reoccurrence this past week that was the worst one yet. I thought I was dying. I refused to go to hospital because…Continue
Hi there all of you ...Thanks for accepting me into this group !! I obviously found you the same way you all found each other - and it was quite a relieve knowing that there are others like me once…Continue
I first contracted MM about 20 years ago. It took months to diagnoise and I almost died before a good neurologist figured it out. They sent my spinal fluid to the CDC and it was confirmed that it…Continue
I just wanted to share something that I tried with everyone. I do not believe that my side effects are as bad as some peoples, but I do have alot of the same symptoms. About 6 months I went to the health store, I spoke with a doctor and they tried me on some vitamins. I took olive leaf for the viral infection, I have not had symtpoms for the last 5 months. I struggle with major headaches that last for months during an onset. I have been headache free for 5 months. Nothing the doctors…Continue
I have requested a speaker from the Meningitis Foundation of America, please put in your request as well, the more that request, the more we will have an opportunity. the website is http://www.musa.org/request_a_speaker
I just joined the forum, and I was hoping that someone had found a miracle cure. Instead, I found a lot of stories similar to my own, filled with frustration with both the condition and the medical community.
However, I may have found something which will help some of you. Since last year I have been taking 50 mg of lugols iodine, 500 mg of valtrex, together with up to 8 grams of lysine per day when I have symptoms coming on.This mixture has moved me from being in bed with meningitis…Continue