Daily Support Designed to HELP Mollaret's Meningitis Sufferers'
This syndrome is very RARE. WE are OUR best SOURCE of information. Chronic Headaches, photo & phonophobia, fibromyalgia, PAIN etc.
Super curious to find out how many of us have had an outbreak of shingles prior to a MM episode. About 2 weeks ago I began to notice that my right upper groin area was numb, in just one spot. The…Continue
Hello all, nice to meet others with the same problems. I have been diagnosed with molllarets by my doctor after my 5th hoapitalization. Every time i get a lumbar puncture, every time i get better in…Continue
Hey members, I am happy to announce we have TSHIRTS!!!! We have a family owned Tshirt company that has put together (2) Tshirts for us at a minimal cost. Right now they are $15 each, but if we can get several people to order, that price will go down substantially. Her name is Diane Light, and her store is on ETSY. (( Links are below )). For those of you located outside of the U.S., you WILL be able to purchase shirts starting next week. She has to get a correct weight, then add that…Continue
Hello everyone! Every July our payment to the Ning Website is due. I know these are trying times we live in and I understand the financial difficulties many of you are in plus this is very short notice. So if you cannot help this year, I completely understand. With that said though, if you CAN help with a donation it would be much appreciated.
Thanks for the consideration~ Much love and support always
Michelle Whittemore - Whitt
Paypal is the…Continue
Just would like to report the success another sufferer i am friends with here in Shanghai had with using IVIG and daily ayclovir 500mg, Since he started the IVIG last year he has had 0 MM flare ups within almost a year ( he usually got 3-4 before)
The specialist neuro immune physician here at Huan Shan hospital believes that a big part of what causes MM is not the actual HSV 2 virus but an hyper sensitive immune mediated reaction to the presence of HSV 2 in the spinal…Continue