I continue to work with the Drs at UTSW in Dallas.  The ID specialist who diagnosed my MM has referred me to the neurologist.  "Can't cure the MM, but we can sure battle the symptoms".  Neurologist is working with me to improve energy, and reduce heaaches.  My testosterone was low so I am now using gel in hopes it increases energy.  Am taking Corgard, which is perscribed for heart patients as it dialates the blood vessels.  One of the "off label" uses is for headaches  as the dialation also…

I have had Meningitis twice in the last two years. The first time I was diagnosed with HSVII and sent home with a PICC line and medication. I went back to work after six weeks and was told I was fine and that the headaches were related to sinus. I accepted this and went on, exhausted and my head was killing me. My husband took me to the ER in January for a severe headache and he told me later I was not acting like myself. The tap was positive for meningitis. I spent a week in the hospital…

I will get the records today, it's been on my mind to do this anyway and you comfirmed my decision. I have to honestly say when I woke up awhile ago I was feeling pretty down about everything. your note gave me inspiration, maybe there is someone in Reno I can go see. another problem is I'm a medicare patient and alot of doctors refuse this kind of insurance. An adult disabled person gets cought up in that system failure you wrote about, I've seen this on both sides due to the fact I worked…

Had a serious bout with MM last week, I'm still bouncing back. I went to the er last week the pain was so intense was vomiting and just plain miserable. the Er doctor insisted on a tap. I'm at the same hospital I was last year when diagnosed with MM. my test came back negative, so the doctor flat told me I do not have meningitis. I asked if he read my records and he said yes but the test don't lie and I was not a meningitis patient. OK, so I had a follow up with my family doctor, this time I…