Daily Support Designed to HELP Mollaret's Meningitis Sufferers'
This syndrome is very RARE. WE are OUR best SOURCE of information. Chronic Headaches, photo & phonophobia, fibromyalgia, PAIN etc.
Woke up yesterday with massive headache. Worked all day, came home and drank some beer (smart I know). It's 5:30 am, headache horrendous. I've had two hospitalizations and was sent home last time.…Continue
Hello all, nice to meet others with the same problems. I have been diagnosed with molllarets by my doctor after my 5th hoapitalization. Every time i get a lumbar puncture, every time i get better in…Continue
I was diagnosed in 2010 with my first very severe bout of meningitis. Lo was in hospital for 9 days, 4 of which I was relatively conscience. I was sent home with a pic line and left on IV treatment…Continue
I am curious to know how many of us are out there. I've reesched as much as I can and can only find one website that references a number from 1994. Last reported number was 50 cases in the US. DOES…Continue
I just wanted to share something that I tried with everyone. I do not believe that my side effects are as bad as some peoples, but I do have alot of the same symptoms. About 6 months I went to the health store, I spoke with a doctor and they tried me on some vitamins. I took olive leaf for the viral infection, I have not had symtpoms for the last 5 months. I struggle with major headaches that last for months during an onset. I have been headache free for 5 months. Nothing the doctors…Continue
I have requested a speaker from the Meningitis Foundation of America, please put in your request as well, the more that request, the more we will have an opportunity. the website is http://www.musa.org/request_a_speaker
I just joined the forum, and I was hoping that someone had found a miracle cure. Instead, I found a lot of stories similar to my own, filled with frustration with both the condition and the medical community.
However, I may have found something which will help some of you. Since last year I have been taking 50 mg of lugols iodine, 500 mg of valtrex, together with up to 8 grams of lysine per day when I have symptoms coming on.This mixture has moved me from being in bed with meningitis…Continue