Mollaret's Meningitis Support Group

Daily Support Designed to HELP Mollaret's Meningitis Sufferers'

This syndrome is very RARE. WE are OUR best SOURCE of information. Chronic Headaches, photo & phonophobia, fibromyalgia, PAIN etc.

Latest Activity

Jennifer Doe commented on Shaun's blog post IVIG + Acyclovir success
"Sorry it did not work for you. It sounded very promising. I hope the plasmapheresis works better! Keep us posted and feel better."
9 hours ago
Shaun commented on Shaun's blog post IVIG + Acyclovir success
"Just started my IVIG course 3 days ago ,ironically it gave me a IVIG induced bout of aseptic meningitis unrelated to HSV 2 ,had typical bad headache and felt so confused I could barely make my way around my own street.Thus we canceled the infusions…"
14 hours ago
Michelle Light Whittemore-Whitt replied to Cheryl's discussion Shingles outbreak... What's next?
"I used to have one circle area on my right thigh that would get shingles; now, I get shingles on my back, my spine, legs shoot a wide variety of areas.  I always get that nerve sensation under the skin right before a rash comes.  I think…"
Saturday
Michelle Light Whittemore-Whitt commented on Michelle Light Whittemore-Whitt's blog post ***URGENT***WEBSITE PAYMENT DUE THIS MONTH - CAN YOU HELP WITH THE COST?
"Thanks Cindy and I sent those articles to you but if you have any problems with seeing them let me know and I will put them in the mail to you."
Saturday
Cynthia McCoy commented on Michelle Light Whittemore-Whitt's blog post ***URGENT***WEBSITE PAYMENT DUE THIS MONTH - CAN YOU HELP WITH THE COST?
"Thanks I will get you a check sent. Hope you got my email, with the articles we discussed. I so appreciate your help and advice. I look forward to receiving your documents for my Dr visit."
Friday
Cynthia McCoy liked Michelle Light Whittemore-Whitt's blog post ***URGENT***WEBSITE PAYMENT DUE THIS MONTH - CAN YOU HELP WITH THE COST?
Friday
Michelle Light Whittemore-Whitt commented on Michelle Light Whittemore-Whitt's video
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Mollaret's meningitis Top # 6 Facts

"I found this on YouTube and thought it was interesting."
Friday
Michelle Light Whittemore-Whitt posted a video

Mollaret's meningitis Top # 6 Facts

Mollaret's meningitis Top # 6 Facts
Friday
Michelle Light Whittemore-Whitt commented on Michelle Light Whittemore-Whitt's blog post ***URGENT***WEBSITE PAYMENT DUE THIS MONTH - CAN YOU HELP WITH THE COST?
"Thank you Mary, love you too!!  Cynthia my address is 2245 Auction Barn Road, Belton TX  76513.  You can make it out to Michelle Whitt.  Thank you again for supporting this site, it helps many people and it needs to continue."
Friday
Michelle Light Whittemore-Whitt commented on Michelle Light Whittemore-Whitt's album
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Updated Pics

"Just updating some pictures on here!  "
Friday
Michelle Light Whittemore-Whitt posted photos
Friday
Michelle Light Whittemore-Whitt commented on Deborah Schiedel's blog post my husbands story from fl
"Hi Deborah, thanks for sharing your husbands MM story with all of us.  May I suggest looking into a drug called Memanatine (namenda).  I think we should all look into this drug that helps with memory problems.  I don't know if it…"
Friday
Michelle Light Whittemore-Whitt liked Deborah Schiedel's blog post my husbands story from fl
Friday
Deborah Schiedel posted a blog post

my husbands story from fl

my husband was dx in 2012..thankfully i worked for an infectious disease doctor at the time when he became infected... and i knew the hosptial staff..because like all of you i had to fight the doctors in the er who kept telling me it was just my husband having a migraine and teying to send him home...call it what you want but being the over protective lioness of her family i flipped on some doctors until shift change and the other er dr came in and did a simple eval prior to the first spinal…See More
Jul 21
Michelle Light Whittemore-Whitt posted a status
"YAY we have Tshirts now!!! I've ordered mine and its on the way!!!"
Jul 21
Michelle Light Whittemore-Whitt commented on Michelle Light Whittemore-Whitt's blog post WHO WANTS A TSHIRT????
Jul 21

Forum

Shingles outbreak... What's next?

Started by Cheryl in Uncategorized. Last reply by Michelle Light Whittemore-Whitt on Saturday. 9 Replies

Super curious to find out how many of us have had an outbreak of shingles prior to a MM episode. About 2 weeks ago I began to notice that my right upper groin area was numb, in just one spot. The…Continue

Tags: Shingles

Quick Question...

Started by Cheryl in Uncategorized. Last reply by Brittney Udall Jul 19. 5 Replies

I read somewhere that Mollaret's Meningitis Is usually diagnosed by exclusion of recurrent viral meningitis (e.g. Herpes). What does this mean?

Hsv researchers

Started by Rob in Sample Title. Last reply by Cynthia McCoy Jul 7. 9 Replies

I am beginning to think the idea that HSV triggers a harsh reaction, but the result is hyperimmunity, may be correct. Has anyone tried contacting the top HSV researchers?

memory is gone and going quickly

Started by daniel in Sample Title. Last reply by Beatrice Klingman Jun 28. 13 Replies

Hello all, nice to meet others with the same problems. I have been diagnosed with molllarets by my doctor after my 5th hoapitalization. Every time i get a lumbar puncture, every time i get better in…Continue

 

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my husbands story from fl

Posted by Deborah Schiedel on July 21, 2016 at 6:48pm 1 Comment

my husband was dx in 2012..thankfully i worked for an infectious disease doctor at the time when he became infected... and i knew the hosptial staff..because like all of you i had to fight the doctors in the er who kept telling me it was just my husband having a migraine and teying to send him home...call it what you want but being the over protective lioness of her family i flipped on some doctors until shift change and the other er dr came in and did a simple eval prior to the first spinal… Continue

WHO WANTS A TSHIRT????

Posted by Michelle Light Whittemore-Whitt on July 21, 2016 at 2:30pm 2 Comments

Hey members, I am happy to announce we have TSHIRTS!!!!  We have a family owned Tshirt company that has put together (2) Tshirts for us at a minimal cost.  Right now they are $15 each, but if we can get several people to order, that price will go down substantially.  Her name is Diane Light, and her store is on ETSY. (( Links are below )).  For those of you located outside of the U.S., you WILL be able to purchase shirts starting next week.  She has to get a correct weight, then add that…

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***URGENT***WEBSITE PAYMENT DUE THIS MONTH - CAN YOU HELP WITH THE COST?

Posted by Michelle Light Whittemore-Whitt on July 19, 2016 at 10:33pm 5 Comments

Hello everyone!  Every July our payment to the Ning Website is due.  I know these are trying times we live in and I understand the financial difficulties many of you are in plus this is very short notice.  So if you cannot help this year, I completely understand.  With that said though, if you CAN help with a donation it would be much appreciated.

Thanks for the consideration~  Much love and support always

Michelle Whittemore - Whitt

Paypal is the…

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IVIG + Acyclovir success

Posted by Shaun on June 12, 2016 at 8:00am 10 Comments

Just would like to report the success another sufferer i am friends with here in Shanghai had with using IVIG and daily ayclovir 500mg, Since he started the IVIG last year he has had 0 MM flare ups within almost a year ( he usually got 3-4 before)

The specialist neuro immune physician here at Huan Shan hospital believes that a big part of what causes MM is not the actual HSV 2 virus but an hyper sensitive immune mediated reaction to the presence of HSV 2 in the spinal…

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