Daily Support Designed to HELP Mollaret's Meningitis Sufferers'
This syndrome is very RARE. WE are OUR best SOURCE of information. Chronic Headaches, photo & phonophobia, fibromyalgia, PAIN etc.
I started taking lamotrigine Friday to help as a mood stabalizer, but since then I have been fighting off a flare up and been having trouble sleeping. I have a call into the psychiatrist about it,…Continue
The best medicine sometimes is education. Human Herpes VirusesThere are 8 currently identified members of the human herpes virus family. They are ubiquitous and extremely well adapted pathogens. The…Continue
This drug could be to viruses what penicillin is to bacteria.CMX 001 brincidovir Is currently on fast track FDA approval and has been used as "compassionate use" in some cases today,despite "not…Continue
I've recently been diagnosed with Mollaret's Meningitis and am meeting next week with doctors to discuss prophylactic treatment. Could anyone share what me what medicine they've been prescribed to…Continue
I'm from Melbourne Australia and I'm a 42 year old female. Two years ago I had my first bout of what I thought was a really bad flu, which I couldn't get out of bed for a few weeks. It passed yet came back about 6 months later, it left me concerned but thought that maybe I was just having a bad year. Skip to two years forward and these attacks kept coming back almost exactly six months apart, although they kept getting worse in severity and duration. I've had two this year…Continue
I have been suffering from Mollaret’s Syndrome for twenty-eight years. My first episode appeared three months after giving birth to my daughter. I have been hospitalized so many times over the years that I have lost count. Luckily, the last two times I became ill this year, I was able to manage the pain at home.
It has been a journey. I went to the Mayo Clinic in 1992, and no one there was able to diagnose what I had. It wasn’t until 2004 that it was diagnosed in Des Moines, Iowa…Continue
Hi everyone, I know we have been on Facebook for a couple of years now. I wanted to let everyone know Micheal Hrehor has started a new Facebook account. He did such a wonderful job on the site I have closed the other account. I would like everyone to take a minute to check it out. It is a closed group. Go to facebook and search Mollaret's Meningitis Support Group. Hope your all well! Tracey