Daily Support Designed to HELP Mollaret's Meningitis Sufferers'
This syndrome is very RARE. WE are OUR best SOURCE of information. Chronic Headaches, photo & phonophobia, fibromyalgia, PAIN etc.
My wife has been in hospital 3 times the last three years for menigitis with a total of 32 days. She was told her cause is herpes 2. She had massive headaches, high blood pressure, and all other sym…Continue
I have had medicine valavir 500mg+500mg in February. I took every morning and every evening one pill. I did not have so much headaches as usually. But. I was feeling so bad, I just wanted to throw up…Continue
This drug could be to viruses what penicillin is to bacteria.CMX 001 brincidovir Is currently on fast track FDA approval and has been used as "compassionate use" in some cases today,despite "not…Continue
Hi! I'm new to this..about a year ago someone asked me if I had been diag w MM! I hadn't ever heard of it, she gave me the info & it was like I was reading about myself! Ive been sick since I was…Continue
I went to a new Neuroligist yesterday. He has another patient with MM. First one that didn't look at me like I have 3 heads. He wants me to try steriods in an IV next time. I have tried steriods in a pill form before. Has anyone had any luck with steriods? I didn't find any difference on steriods before.
We are also looking at drug induced meningitis. One trigger is Ibuprofen. Other are some antibiotics, etc. Look it up on the computer. very interesting.
The Doctor we are going to see in Boston has written several articles on Chronic Reoccurring Meningitis.
Ed had a cisternogram. Its like a spinal tap to detect a leak of body fluids which can cause Meningitis. There is no leak, so we are back to square one. We have an appointment with the associates of the Doctor in Boston that wrote the article on chronic reoccurring meningitis.
We are bringing all of our blood work and test results thus far, our appointment is December 2. It is with a neurologist and an infectious disease Doctor in Mass General. I will report back.