Mollaret's Meningitis Support Group

Daily Support Designed to HELP Mollaret's Meningitis Sufferers'

This syndrome is very RARE. WE are OUR best SOURCE of information. Chronic Headaches, photo & phonophobia, fibromyalgia, PAIN etc.

Latest Activity

Tina is now a member of Mollaret's Meningitis Support Group
Tuesday
kd is now a member of Mollaret's Meningitis Support Group
Jun 26
Jenn replied to Lauren Branca's discussion My story
"I have had 4 episodes so far. Just got over the 4th and it is the only one that they haven't done a spinal tap for. I am honestly surprised your dr's have never done a spinal before. It was the only way for them to know if mine was…"
Jun 25
Lauren Branca posted a discussion

My story

Hi all. I am new to this group, I have been seeing an infectious disease dr. and she has done lots of blood work, which has all come back looking good. The reason she thinks I have MM is this...I have been sick with this unknown virus for about 20 years. I am very healthy usually, but when I get the episodes, I get really sick with terrible headache, neck ache, body ache and fatigue. The episodes can last from a few days to a few weeks, and can be as frequent as every few weeks, or sometimes…See More
Jun 25
Lauren Branca is now a member of Mollaret's Meningitis Support Group
Jun 24
Krista is now a member of Mollaret's Meningitis Support Group
Jun 20
Beatrice Klingman left a comment for Teresa Andrews
"oup. I hope you find helpful helpful information here!"
Jun 19
Teresa Andrews is now a member of Mollaret's Meningitis Support Group
Jun 18
Annie replied to John Leahy's discussion John Leahy: Gone but Never Forgotten
"Vhairi, I'm so sorry for your loss."
Jun 11
Melanie Braido replied to John Leahy's discussion John Leahy: Gone but Never Forgotten
"John will be missed. So sorry for your loss, Vhairi."
Jun 10
Elizabeth Alpert replied to Jenn's discussion White spots on throat before it starts
"Hi my name is Elizabeth and I just wanted to let you know that it has happened to me a couple of times."
Jun 8
Tracey Martel commented on Michelle Light Whittemore-Whitt's blog post Annual Payment for This Site is DUE in 6 weeks. Please donate via PayPal today if your able to!
"OMG! This is wonderful! TY So very much."
Jun 7
Tracey Martel replied to Jenn's discussion White spots on throat before it starts
"Hi Jenn, I don't believe I have ever had spots on my throat. My always just starts with the migraine."
Jun 7
Jenn posted a discussion

White spots on throat before it starts

I just joined this group and have a question. I am currently going through my 4th episode, my 3rd within a yr so they r becoming more frequent. Everytime this happens, it starts with a sore throat with white spots but I test negative when they do a throat culture, then I get a high fever and major chills, and then a couple days later is when the severe migraine starts. Although they knew it was meningitis, they just diagnosed me the 3rd time last august tht it was specifically MM. I was…See More
Jun 6
Jenn is now a member of Mollaret's Meningitis Support Group
Jun 6
Michelle Light Whittemore-Whitt replied to Michelle Ferguson's discussion Finding the fire
"Elizabeth yes I have the same thing. But mine is changing now that my cycle has stopped. You most likely are in perimenapause and that amps up the pain ten fold. I have been dealing with monthly shingles for several years now. My stomach burns all…"
Jun 6

Forum

My story

Started by Lauren Branca in Sample Title. Last reply by Jenn Jun 25. 1 Reply

Hi all. I am new to this group, I have been seeing an infectious disease dr. and she has done lots of blood work, which has all come back looking good. The reason she thinks I have MM is this...I…Continue

John Leahy: Gone but Never Forgotten

Started by John Leahy in Sample Title. Last reply by Annie Jun 11. 6 Replies

Hi everyone on here.This is John Leahy's daughter, Vhairi.I regret to inform you that my father passed away on Tuesday, May 26th, 2015.He was diagnosed with cancer in February, and 3 months later…Continue

Tags: drugs

White spots on throat before it starts

Started by Jenn in Sample Title. Last reply by Elizabeth Alpert Jun 8. 2 Replies

I just joined this group and have a question. I am currently going through my 4th episode, my 3rd within a yr so they r becoming more frequent. Everytime this happens, it starts with a sore throat…Continue

Finding the fire

Started by Michelle Ferguson in Sample Title. Last reply by Michelle Light Whittemore-Whitt Jun 6. 3 Replies

I am wondering if any fellow mm SURVIVORS experience the fire that comes out of nowhere about the 5th day of each (I'm on #9) episode. It's like my whole being says "NO #%##% WAY" and the…Continue

 

Photos

Loading…
  • Add Photos
  • View All

Videos

  • Add Videos
  • View All

Blog Posts

Intermittent Fasting

Posted by Rich Diehl on May 17, 2015 at 10:31am 3 Comments

     Has anyone every tried intermittent fasting. I just started on the 5:2 diet, where you take two days of the week and eat less than 500 calories (modified fasting). For the first few weeks, it gave me a mollarets flare up for a few days each time I fasted. However, each week that passes I seem to get fewer flare up. Anyone else have experience with this?

Rich

Annual Payment for This Site is DUE in 6 weeks. Please donate via PayPal today if your able to!

Posted by Michelle Light Whittemore-Whitt on May 15, 2015 at 11:07am 5 Comments

Hello everyone!  The annual payment for this site is due in about 6 weeks.  I cannot afford to pay for this alone due to illness and I'm currently not working right now.  With that said, if you are able to help with a donation (any amount is much appreciated), please consider doing so through PayPal.  It is a secure…

Continue

IM BACK! How is Everyone?

Posted by Michelle Light Whittemore-Whitt on March 29, 2015 at 5:44am 3 Comments

Welcome to all the newcomers.  I missed you all, bring me up to speed on what is happening.

Michelle W.

I just wanted to share something that I tried with everyone.  I do not believe that my side effects are as bad as some peoples, but I do have alot of the same symptoms.  About 6 months I went to the …

Posted by Brenda Mayer on January 7, 2015 at 10:20am 3 Comments

I just wanted to share something that I tried with everyone.  I do not believe that my side effects are as bad as some peoples, but I do have alot of the same symptoms.  About 6 months I went to the health store, I spoke with a doctor and they tried me on some vitamins.  I took olive leaf for the viral infection, I have not had symtpoms for the last 5 months.  I struggle with major headaches that last for months during an onset.  I have been headache free for 5 months.  Nothing the doctors…

Continue
 
 
 

Members

© 2015   Created by Michelle Light Whittemore-Whitt.   Powered by

Badges  |  Report an Issue  |  Terms of Service