Daily Support Designed to HELP Mollaret's Meningitis Sufferers'
This syndrome is very RARE. WE are OUR best SOURCE of information. Chronic Headaches, photo & phonophobia, fibromyalgia, PAIN etc.
I was diagnosed 25 years ago with this disease, later officially Mollaret's. It makes sense to me that it might be a new strain of HSV2 or drug resistant. In any case, it has been a nightmare and not…Continue
Hello, my name is April. My husband is now recovering from his sixth episode of aseptic meningitis. Each time, it seems the recovery process is longer and harder. He was discharged from a week…Continue
Hi all!! I just wanted to offer my phone number to anyone who would like to chat on the phone about their experiences with MM episodes. I am looking to swap stories and in doing so, be able to bring…Continue
We are also looking at drug induced meningitis. One trigger is Ibuprofen. Other are some antibiotics, etc. Look it up on the computer. very interesting.
The Doctor we are going to see in Boston has written several articles on Chronic Reoccurring Meningitis.
Ed had a cisternogram. Its like a spinal tap to detect a leak of body fluids which can cause Meningitis. There is no leak, so we are back to square one. We have an appointment with the associates of the Doctor in Boston that wrote the article on chronic reoccurring meningitis.
We are bringing all of our blood work and test results thus far, our appointment is December 2. It is with a neurologist and an infectious disease Doctor in Mass General. I will report back.